London Elect: You’ll all look swell when you’re sworn in. Thankfully only the mayor will have to pull something over his swollen head.

I’m a little perturbed by our local politicians. Elected, incumbent and future. As I have stated earlier, I enjoy being alone and I am slightly agoraphobic. I like it out there but I am more at ease between my own walls. That being said or in fact re-said, I don’t often poke my head far from the perimeter of my property. For others it may seem odd but to someone who has spent a few days in cells of confinement, it is endless acres to stride and stretch about 200 feet by 75. I can run a marathon with such dimensions.

This is my present and most thought out excuse for not getting out to meet the candidates. It makes me wonder how many citizens with disabilities that make “getting out to meet the candidate” more difficult than my anxieties, were accommodated in some way?

I hope it happened. It must have. It did! My mistake. It must have been in the small print on the thousands of signs I saw posted about the city. My windows were rolled up when they were shouting and waving from street corners to tell me the number to call if you have political and or municipal concerns you want to share with a candidate but are somehow disadvantaged.

I’m sure the city has accessibility plans for people with disabilities but how many candidates had that as part of their mandate and operating platform?

It does seem a stretch to accommodate someone politically who has a disability. Sure, you’ll pick me up and almost cast my vote for me but what about what I think? What about my ideas? Disabled may be a political disadvantage but it is rarely an intellectual challenge that would preclude being listened to. I know a man who uses a computer to speak and his wit is unquestionable. Did anyone take the time to listen to him? He is a citizen of this city. We can make voting accessible for him but democracy is lopsided when a citizen does not have the opportunity to speak. Asking questions and making your ideas and feelings known is what gives flesh to bone. Maybe my vote won’t count. Maybe my candidate won’t win but if I should be able to voice my ideas and concerns.

It would be a double stretch to accommodate let alone seek out a community advocate. I don’t have enough cash to propel a politician but the sadness is that none of the candidates had enough cents to question my questionable self.

I know many first thoughts will be: “the vanity of this fool.” I won’t argue vanity (though my baldness is a statement in itself) but this fool has been fairly front and center in the London community when it comes to mental health. It wouldn’t be impossible to overlook me but it could be argued that not a single candidate paid much attention to the citizens of London who have or do suffer from serious and persistent mental illness. I think it’s safe to say none were sought out and queried as to how to best serve them on council.

Can this city influence, progress and promote better mental health for its citizens?

I’m a fool for this page so I shall step on my tongue as to how but possibly one of these politicians elect can make up for not considering people who are marginalized and stigmatized; in their political vision.

For Immediate Release: Documentarian John Kastner To Issue Public Apology

http://www.cbc.ca/q/popupaudio.html?clipIds=2547280251
http://www.theglobeandmail.com/globe-debate/forensic-psychiatric-patients-are-ill-not-evil%E2%80%94and-we-should-stop-hiding-them/article18205568/?utm_source=Shared+Article+Sent+to+User&utm_medium=E-mail:+Newsletters+/+E-Blasts+/+etc.&utm_campaign=Shared+Web+Article+Links

I am calling on one of Canada’s most respected and accomplished documentary filmmakers to issue a public apology to those he seems to advocate for. The four-time Emmy Award winning John Kastner should have no issue with saying sorry to the forensic patients he claims to care about.

I am not calling him out as someone who has been found Not Criminally Responsible On Account of a Mental Disorder (NCR); I am calling John Kastner out as the 2014 Canadian Alliance On Mental Illness And Mental Health Champion of Mental Health.

Please read and listen to Mr. Kastner. If his own syllables do not solicit indignation to everyone involved in mental health I can only assume you don’t mind using stigma for a serviette.

Mr. Kastner has not lived up to the standards of respect and empathy for those affected by the issues. His words are not only offensive but in their context they are thoughtless and a serious error in judgment. Using his own words they are “grotesque stereotypes.”

Many seem to be shouting about how great Mr. Kastner’s productions have been but we’re so busy patting each other on the back that we have failed to realize we are seeing John Kastner’s reality. Has anyone stopped to consider the cognitive bias, confirmation bias and facilitated communication that went into these films? I suspect the presence of all three when even one would undermine a documentary’s validity.

Thank the heavens for ratings and awards or the voice of John Kastner may never have been heard. The public would be bankrupt of his beneficial benevolence or is it barely bull? It brings a tear to my eye to have someone so informed and sensitive to my situation and experiences refer to me as a glassy eyed lunatic who spouts gibberish. Such a saint deserves recognition and awards from other incestuously informed liberals and cultural trendsetters. “Look what we did for the monsters and freaks.” I can hear the martini glasses clinking among the society that at least Sean Clifton is included in.

I don’t know about other individuals who are marginalized and disadvantaged in some form but I find it incredibly insulting to be considered not eloquent enough to defend myself. It isn’t exactly empowering to have someone who sees the world through an eyepiece speak for me. Further, even if I was tongue tied I don’t think I could do a worse job.

I can think of no other disability or minority whose self proclaimed spokesperson in fact has no personal experience or stake in the issue outside of wanting to be placed on a pedestal for personal promotion. Having Mr. Kastner speak for me is like having someone with two legs explaining the meaning of amputation and the problems of a prosthetic. It would be profoundly presumptuous for me to sit in a wheelchair and walk away singing the sorrows of being dependent on one for mobility. Further, to take that self-righteous responsibility on myself would denigrate that disadvantaged person and vanquish their voice which may be where they excel; where they dream and dance.

John Kastner is not a patient nor a psychiatrist, therapist or clinician. He has no relevant experience or education related to forensic mental health. It is obvious to me that while he was looking through his lens of presumptions he missed the entire reality of possibilities. When John Kastner speaks it is like asking the horse what it’s like to be a fish. John Kastner felt a raindrop and now he thinks he has gills.

John Kastner could make a dozen movies about NCR and never understand patients. He clearly doesn’t comprehend their feelings and is without any argument not even clinically trained to appreciate what is actually happening to these individuals. Awarding this author of stigma is an affront to my efforts and the abilities of all Not Criminally Responsible individuals. Thanks for the help but it is in fact harm.

I believe white people can advocate for African Americans but when they use any and all derogatory descriptors they become little more than a man on horseback with eye holes cut in a sheet. You may not be the one to lynch but you are doing little more than fueling the flames that allow the rest to fasten the fibers that tear my flesh.

I don’t need to speak to each of John Kastner’s stigmatizing statements. I could easily refute “glassy eyed“(should be in medical journals as a symptom) “monster” (meaningless and obtuse), “scary as hell” (like he’s even been to the border of it), “raving lunatics” (what constitutes raving and lunatic is an 1800’s misnomer) “spouting gibberish” (read my blog and letters from solitary confinement) but I will speak to his preoccupation with the “Jekyll and Hyde transformation.” This seemingly real transformation he shouts about from Canadian Broadcasting Corporation’s “Q” radio and the Globe and Mail should be easy for any documentarian to prove. I challenge Mr. Kastner to show me the factual footage of this apparently very real phenomenon. John Kastner spent 3.5 years in a forensic facility so it should be simply a matter of reviewing a few reels.

John Kastner doesn’t seem to poke his head from polishing his awards and promoting his victimizing views so in the meantime any of us should be able to find this transformation on Google if not in a dictionary. If it is a recurring phrase in ‘John jargon’ it is obviously a recurring event that anyone with an interest in psychiatry could uncover. It must be in every psychiatric and psychology textbook in the nation. Even pharmaceutical companies should have images of this remarkable transformation to promote their anti-psychotic pills or in John Kastner’s world, injections. I have mainly experience to fall on so I will eagerly wait to eat my words which is becoming easy when John Kastner thinks he’s the one who should be using them.

A fantabulous film should not excuse the damage John Kastner has done with his mouth. Mr. Kastner calls on forensic patients to “stop the apologizing.” And he should start.

Aside

I received my final grade 12 credits at an adult learning centre in St. Thomas. I was in my thirties and living on a forensic rehabilitation unit. I had been to college for a year but somehow without my grade 12. I don’t remember it being my idea to go and I found it tiring but it was good for me in many ways. I saw faces that were different and met some great staff and students.
It was a little awkward being a student who was locked up at night. The big white vans we travelled in were familiar to the community. They gave us bagged lunches which I never thought much of figuratively and literally. A young woman who was friendly to me commented on the sawed off juice containers they included. “Where do you get those, they’re cute.” They didn’t give us Costco cards or I’d have flashed one. I should have mumbled something about my aunt who was either in hospital or worked in one.
We would sometimes have to take a taxi back to the hospital. One day a fellow patient and I were in one together. When we got back to the hospital he asked me if I knew I was supposed to sit in the back. I would sit in the front when I was alone or not. That’s where the view was. I might not have had my grade 12 but I wasn’t stupid.

Touch

I sat in on a presentation on sexuality among mental health patients. The whole topic is a little like making love to a Porcupine. There are many points to consider. I wasn’t as fortunate as some patients but there was certainly sexuality among us. I can remember smoking and drinking coffee while people rolled on a blanket in front of me kissing. I enjoyed the coffee more. There were certain stairwells that were considered intimate no matter the weather. We were also blessed with a well treed knoll on the hospital property. We called it “Pecker Hill.” Even when I was not well the naming was evident and amusing. I know of one poor individual who didn’t quite make it to the hill and found ecstasy among the long grass not far away but apparently far enough.

We can laugh or shake a finger but I was without an intimate encounter for 7 years. I don’t know about the 7 year itch but I wallowed in the 7 year rash. Had the opportunity presented itself to me I’m not sure I would have made it to the long grass.

The World Health Organization defines sexual health as a state of physical, mental and social well-being in relation to sexuality. Being on a locked ward for me was just that. If my footsteps had boundaries you can imagine the same on my sexuality.

I can remember being on the Forensic Assessment Unit on a vacation from jail. One day I walked by the common area and saw a hairdresser giving a patient a haircut. I was months without a trim and was eager to find out how this all worked. I paced by a few times and finally asked if I needed an appointment or money both of which I was without. I needed neither and when I sat down I was astonished by being touched. Usually you check how much hair is falling on the floor but each time my scalp was touched that’s all I could focus on. All my visits for months were from behind glass and my fellow prisoners were not known for hugging.

If we are placing individuals in situations where touch is unlikely it becomes imperative to introduce a healthy replacement. Some in the psychiatric community are unlikely to encounter touch because of their symptoms and or resulting circumstances.

Part of sexuality is a connection. Consider what it would be like to go for months and years without being touched. Even those of us who have the benefit of touch can recognize its power and importance when we visit a massage therapist. The social, mental and physical benefits can only translate into improved mental health and overall well being.

Segregation; the Hole is deprivation of everything. I was psychotic for most of this deprivation but pulled an important truth from the experience. I had a cheap French/English dictionary in my pillowcase. I wrote a note from the Hole to one of the guards who were bilingual. In choppy French I wrote the following:

“I need love and touch I beg you, more.

I’m not crazy or madness, truly yours

I’m tough and strong angel.

Please mention it nay not what

In any manner that push me by heart and has your friendship; we shake on it.

Please mention it nay not what.”

“Shotgun”

I remember when I was finally transferred from jail to the forensic hospital. As I exited the jail handcuffed and shackled I was at first struck by the open space. Being transferred is usually pleasant and a little like watching a movie. You see and hear things you are unaccustomed to. Green grass or the sound of tires on pavement. There were several jail nurses sitting at a table outside on break. I bowed my head and thanked them. They did what they could.

I climbed into the kennel of the transfer van. It was basically like being a bean stuck to the inside of an empty tin can. I didn’t have much of a view and can recall no landmarks. I knew I was heading to St. Thomas but did not recognize the fact until we parked.

After I left college and my lifelong dream of being a Conservation Officer, I applied to several police forces. At that time there were many more interested in police work than were ever hired. I did have one interview. It was with the St. Thomas Police Force.

I should have been more specific when I prayed to ride in a police vehicle in St. Thomas. I should have specified it was the front seat I was interested in. I’m pretty good at reading people and I sensed that the two officers who transferred me would be unappreciative of me yelling “Shotgun.”

Curriculum Vitae

I contacted my Member of Parliament Ed Holder’s office yesterday to inquire about taking part in the processing of Bill C-54. After I forwarded one of my blog entries on the subject, I was informed that I might send my Curriculum Vitae to the Minister of Justice but they didn’t know if I would be successful. I was always under the impression that democracy was both interactive and inclusive.

To request a Curriculum Vita from an average citizen causes me to question who the government listens to and represents. In Canada, a Curriculum Vitae is a professional document which many psychiatric consumers would find exclusive and intimidating. It is a document usually reserved for lawyers, executives, professors, physicians and scientists. I am pleased this government calls on the expertise it is obviously lacking but Bill C-54 would benefit from input from individuals with lived experience.

I assume my Member of Parliament is confident in the fact that I and most citizens do not possess a professional history. I have no academic credentials, my publications are not academic, I have no research experience and my contributions and significant achievements pale in comparison to most.

Why does my government suggest I list my professional licenses and certifications? Why does my government request I list my scientific and academic research? Why does my government suggest I list the papers, books and publications I have written? Why does my government require my thesis or dissertation? Am I not enough as a citizen? What purpose is there in discouraging my voice?

I believe I am qualified to speak to the issue. I may be a common voice but I have had an uncommon experience and posses an uncommon perspective clearly not considered. I do not belong to any professional associations but that does not mute my 34 years of psychiatric experience.

I have always had the utmost respect for individuals with letters in front of or behind their names. They are hard fought and earned. At the same time I consider lived experience to be important. No physician can think or calculate their way into what I have experienced. It is one thing to walk the halls with a clipboard until 5 p.m. It is quite another to hear the key turn as you remain behind.

Are all citizens interested in contributing to democracy dissuaded or is it because of my apparent disability? It is distasteful either way. This is not a note of surrender. I will come up with a Curriculum Vita. Curriculum Vitae in Latin is “the course of my life.” If that is not enough it will be a shame on my government and a kick to us all.

 

Routine

When I was locked in the hospital I had difficulty knowing which day of the week it was. Most days seemed like “Groundhog Day.”

“Groundhog Day” is a movie where the main character Bill Murray wakes up each day to the exact same events; he is caught in a “time loop.” He realizes his predicament and tries to take advantage of the situation since no one else is aware of it. Finally he uses his situation to improve himself and those around him and eventually breaks the “time loop”.

Routine was supposed to be my friend. It was supposed to provide me with stability. In essence it was stagnating and presented a wide path to boredom.

Most of us are creatures of habit and subject ourselves and others to routine. I can appreciate how chaotic the world would be if we all woke up at different times but routine can be slumber itself. How much of the world goes unnoticed and unappreciated when we travel the same roads at the same time? We have the ability to find the unique even in routine but often the result is a string of days we pass through unaware of ourselves and our surroundings.

When I was a child repetition was used to sculpt my behaviour and knowledge. As a patient it seemed only to chip away at my spirit. I did not despise all of my regularity in part because I could not see it. I was unable to step to the side of myself with a view of me leaning against the same wall in the same hall waiting in line for medications. I was fairly content to wait for the food trays to roll down the hall with Saturday’s special. My most poignant recollection of routine was watching people form a line for medications. This wouldn’t be unusual normally but the evening line was almost always formed before the medication cart was present. People stood behind each other in front of nothing waiting for sedation. Routine may lead to productivity and continuity but it can slowly ruin a person who has no escape. We each have an inner clock but the bell does toll for thee and there is so much to see.

Is routine nature or nurture? Are your habits tied to the sun and moon or do you sway to some man-made tune?